Hello Everyone,
After both of us got aware of our Genotype,
At first, it did not seem like a big deal for us, We both thought, Maybe we can manage it, But then reality hits me like a ton of bricks. Which is that There’s a chance our children could inherit two sickle cell genes (SS) and suffer from the full-blown condition. This is a lifelong issue, I don't want any of my unborn children to suffer a condition that shouldn't be there.
Sometimes we need to take some drastic decisions in Life but after watching several documentaries on the sickle cell issue, after seeing several real life examples, after many explanations from the doctors, reading studies, and joining sickle cell support groups.
What I learned was heartbreaking and Sad. Sickle cell disease is not just about occasional pain crises or a one time kind of situation; instead it is about lifelong hospital visits (Frequent), unpredictable health complications, and the knowledge that your child’s life could be marked by pain and limitations.
So I imagined what it would be like for my child to miss school severally during the time He will be sick, or times which we are to worry about them getting infections that could turn deadly, or to see them struggle with simple things most kids around Him take for granted. And then I thought about this, and I said Loudly: this is not the kind of Life I want for my Kids.
This is a fictional story of just how the reality would be in a saner environment. A sickle Cell awareness as I could ever imagined it.
I remembered I stumbled across a video of a lady on the X app (formerly Twitter) she was sharing her ordeal as a sickle cell patient, it was truly a heartbreaking one.
