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RE: What My Camera Roll Would Reveal About Me | LOH 303

Oh dear, I appreciate the frankness regarding your health issues @zoe01 You are not the only person that struggles not only with the disease itself but the long termed mental effects upon us. You'd be surprised how many of use live with chronic health issues here.
For instance my Parkinson's disease interferes with my hand writing, often immobilizing my right side and right hand. And frequent brain fog from a Liver condition also literally 'clouds' my writing. It is difficult for me to type, sometimes spending up to 30 minutes just to comment on one post.

My most recent photos over the last year would reveal that I rarely smile. More often a frown/grimace as I endure the constant neurological pain as a rare symptom of Parkinson's. The only relief is having frequent bed rest until my GP and Specialists come up with a solution. This is why I infrequently post on my blog. I have lots of ideas on the writing back burner.

I certainly hope your Specialists make progress on a clear diagnosis and a plan to address it and thanks for sharing 🙏❤️ @zoe01

I am determined to stay on Hive a long as I can.

!LADY

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Thank you for opening up and sharing all of this with me. It really means a lot to know that I’m not alone in this journey. I’m so sorry you’re dealing with all of that, specially the pain and struggles you face. Sometimes I get really scared too there are moments when I choke on food and genuinely feel like I might die. It’s frightening because I want to live and I still have so many dreams I want to fulfil. 🥲

Please take care of yourself too and keep holding on. ❤️ 🫂

!PIZZA

I can get a pretty good ideal what you are going through just by the medication regime itself. I've been a nurse for over 25 years and I am quite familiar with the pharmacology. Most are designed to control symptoms until the cause is identified and dealt with. Until then it is a long process with your General Practitioner and Specialists to narrow down the actual cause. I hope for your sake a cure will soon be found 🙏

We wish it could be faster. I've even doubted if I will ever feel better again and that my time may be much shorter than I realize. I want to live too but I would be satisfied as long as my adult sons can manage themselves and be independent without me should that day comes.
I would love to have a grand child before I go.

May God bless you. 💕

Sorry for the late reply and thank you so much for your kind words and for sharing your experience. Your message really means a lot to me. I truly hope things get better for both of us and that we get more time to enjoy life with the people we love. And I hope you get to meet that grandchild someday.

May God bless you and your family too. 🤗

!PIZZA